Let’s Do This
Infusion Day 1
Wednesday, February, 26th was infusion day for a drug that is designed to alter your t-cells and b-cells so my immune system will stop attacking my nervous system. I was not excited about taking the drug. I have not been willing to take any drug for MS because of long term side effects and the fact that no disease modifying drug on the market will change the outcome of disability. Now, I have prayed many times about taking a drug and I have had friends and family that wanted me to take something for the disease but, as I sought the Lord, His answer was always a NO. This expression on my face was the same expression I was giving the nurse as she was "educating" me on the drug. LOL
Isaiah 41:10 fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.
You are probably wondering why I am taking the drug now. If you have been following me on Facebook or you know me personally, I have been praying that God would lead me to information and people that would help me to help my body heal from this disease. He has been faithful.
Since my minor car accident in December of 2018 and an acute infection in December of 2019, my nervous system relaunched it's attack on my nervous system. Through my discussions and misunderstandings with my neurologist, God opened a door to give me the opportunity to speak to a neurologist that was in charge of the HSCT (stem cell transplant) program at the Cleveland Clinic. This doctor was the most compassionate man I have ever met. After a lengthy visit, we were able to come up with a plan to get me into the HSCT program. This drug is part of that plan.
Ultimately, I do not know how God is going to heal my body of this disease. It may be HSCT or I may wake up tomorrow and he says- Go! Your faith has made you well. What I do know is that I am going to continue to trust God with His plan. This is another start to another part of this journey. I still believe He is going to do the impossible in 2020.
This visit was not just about me getting medication or that it was a step towards HSCT. While I was in Cleveland, God placed people in my path that were not properly informed on treatment options, people that were hopeless, people that had friends that were living with MS and struggling. I pray that I was able to give them some hope and encouragement. My mom got to encourage a man that was caring for his wife. I was able to encourage a host at the hotel that had a friend with MS. God gave me more ideas for this blog to help and encourage others with autoimmune disease. It was a good trip and I am grateful to be able to serve Jesus by encouraging others.
I want to let you know that at this time, I have no plans to turn this blog into a blog for autoimmune disease. My autoimmune disease has impacted my life in a way that I have a renewed desire to pray for people that are in impossible situations. My posts will always speak of my journey with an autoimmune disease because I believe that is what God is using to draw me even closer to Him. In the near future, you will find links to educate yourself on living with an autoimmune disease by clicking on "More" on the home page.
While I was in Cleveland, I was seeking some additional information for some individuals that contacted me through Facebook. I had a chance today to communicate with them with the information that I obtained while I was there. Friends, I do not know how to express the feeling I have in my heart. I want you to take a moment to pray for Kacie. I was communicating with her Mom through Facebook Messenger and I could hear her plea for healing for her daughter. Kacie has had MS for over 10 years. She has tried different medications, but her symptoms and disability continue to worsen. Pray for her mom and dad. I had a very positive conversation with her mom, but my heart breaks for her. If you have time, leave some positive and encouraging words for Kacie and her family. I will make sure she gets them if she does not see it on this page. We need to take them to the roof, place them at the feet of Jesus and believe that God is going to do the impossible for Kacie!!
1 Peter 3:15 but in your hearts honor Christ the Lord as holy, always being prepared to make a defense to anyone who asks you for a reason for the hope that is in you; yet do it with gentleness and respect,
It does not surprise me to find that God is placing people in my path that also need encouragement and hope. Who is God putting in your path? People need support from another person that will give encouragement and hope and point them to Christ. I was really expecting to go get my meds and come home, however God had additional plans.
I want to end this post by encouraging you to share your impossible as God leads. Encourage others. Point them to Jesus while you are on your journey. We are not meant to do life alone and I am glad to have all of you in my life so that we can do life together! Until next week, have a good night.